When the appointment for the
Surgeon was changed, it was a Friday. I honestly have no recollection of the
weekend that followed. I’m sure there was crying, confusion, fear, and anger-
there’s always anger after you’ve been told you have Cancer. So on Monday, my
girlfriend and I went to see the surgeon. He said that we needed to see the
Oncologist to get a better idea of what the best course of treatment was before
talking about surgery. He did seem confident that the surgery would be a
success, and give me the best chance for a longer life span than not having the
surgery (at some point I will talk about how odd and unsettling it is to hear
the words “ extend your life span” while in your 40’s). Still, we needed to see
the Oncologist first. He asked us the name of the Oncologist we were seeing.
When we told him, he said that if anyone in his family got Cancer, that’s who
he would send them to. It’s always nice when you have one Dr. who can recommend
another Dr. so highly- even before you meet him.
Two days later my girlfriend
and I were in the Oncologist’s office. There’s a surreal quality to many of the
things that have happened since my diagnosis. Walking into the Oncologists
office for the first time is definitely one of those surreal moments that all
to quickly become painfully real. Sitting in the waiting room, I felt like a
cartoon cat who’s hanging from the ceiling by his claws. There’s paperwork to
fill out as usual for a new Dr.; this time I (very wisely) made sure that my girlfriend
was to be told anything medical that came up- I wasn’t making that mistake
twice! Then my name was called and we were escorted to a room. The Dr.’s
medical assistant asked some questions and then drew blood. Another thing you
get used to, like it or not is that you become a human pin cushion- they draw
enough blood to paint a Picasso.
Enter the Oncologist. Again, I
have a hard time remembering exactly what happened in what order. It’s been a
while, and there is so much information that was thrown at us, it was
overwhelming- as if having Cancer isn’t overwhelming enough. I was told not
only had the tumor on my colon spread to my liver, but there were multiple
legions there. When I asked how many, he told me the amount doesn’t matter,
only that there were multiple legions, and that I needed to get a biopsy of my
liver to confirm the diagnosis. He said there was an 80% chance that the
legions were Cancer- the biopsy would confirm that. He told me I also had to have
a port surgically implanted (in my upper chest) to deliver the Chemotherapy I would
need. The port is connected to my jugular vein, and it makes it easier to take
blood, and have treatment every two weeks. He did tell us there was a small
chance that the legions were just granuloma or something else.
I perked up a bit at that and told
him that if there was a chance that it wasn’t Cancer I wanted to postpone
implanting the port until the diagnosis was confirmed. I was desperately
grasping at straws for any little indication that it might not be Cancer, so I
could stop worrying that I was going to die. He explained to me that they were
as sure as they could be that it was Cancer; the biopsy was just a confirmation,
and I needed to get the port as soon as possible to start treatment (Chemotherapy).
In addition, the blood work they did was only good for a limited amount of time
before the surgery, and if that time ran out they would have to draw blood again.
That would delay treatment, and he wanted to get started as soon as possible. I
asked about surgery before Chemotherapy. He said since the liver had been
compromised, and is a vital organ, that took precedence over surgically getting
rid of the tumor in my colon. We were told if I had a good response to the
Chemotherapy it would not only reduce the legions in my liver, but shrink the
tumor in my colon as well. After a brief discussion with my girlfriend, I agreed
to have the port implanted, and have the biopsy on the same day. All in all,
the Oncologist spent about 90 minutes with us, explaining things and answering
any and all questions we had in a very calm manner. One of the other things I
do remember him saying was “Don’t look at the internet”. I was good with this
for about six months, then I had a moment of weakness and started surfing the
net. That’s a mistake I’ll detail in a future post, let’s just say I learned to
always listen to my Oncologist. After he left, I was given the first 2 of many
prescriptions- to deal with the side effects of my treatment. One prescription
was for mild nausea, and one was for severe nausea- an ominous sign of things
to come. I had the port surgically implanted and the biopsy done within a week
(which I will also go into detail about in the future). Next up was the
beginning of my Chemotherapy.
Stay ahead of the nausea by faithfully taking those pills ...set a timer. Chemo is scary in concept. But you'll find your chemo lounge will be full of warmth and caring. You'll be with your peeps. They know what you are going through and together you'll find healing. You and that gal are v.brave.
ReplyDeleteI told myself I would not comment until I finished reading each and every blog, but it amazes me how you bring up art in such a serious situation. It made me smile.
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